Sharifa Sultana

Background:

The stigma associated with reproductive health and sex-ed is inevitable in the Global South. This risks many Global South women’s health as they reject many of the modern health and well-being supports offered by their local government and other organizations as their support and care policies do not understand the socio-cultural practices of the women in question. Existing works show that many women turn away from reproductive well-being support offered by modern healthcare practices because talking about or seeking help for such care is a taboo in their society, many women do not understand the modern terminologies, and many of the care practices do not reflect nor recognize the values women in the Global South hold. Like many other countries in the Global South, this problem is still prevalent in Bangladesh and India. Our existing research shows that many women in these areas are particularly stigmatized about birth control, pregnancy support, fertility service, contraceptive use, and menopause care and less frequently seek modern healthcare support. When seeking help, women find it difficult to navigate across community perceptions, sociocultural practices, norms, and relationships, as well as across the fragmented and distributed nature of healthcare services. All of these challenges jeopardize women’s reproductive health that have profound long-term consequences for parents, children, and society in general.  

We will co-develop an AI framework to help address the stigma related to reproductive well-being in the Global South. We will leverage local knowledge and infographic practices on visual data curation and visual narratives. We will integrate rural Bangladeshi and Indian visual communication methods to co-develop AI-mediated infographic well-being tools for women to support their reproductive health and decision-making practices to improve their overall well-being We build on decolonial-AI literature and pluralistic co-design. 

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Initial Fieldwork and Findings:

We engage with rural women and artists in Bangladesh and India, using ethnographic techniques. We employ participatory observations, contextual inquiries, storytelling, interviews, and focus-group discussions in this regard. Additionally, we frequently engage with them in codesign sessions to brainstorm ideas. 

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Our Initial findings bring in knowledge of local Bangladeshi and Indian intelligence of data curation, visual narratives, and infographics from rural arts and crafts, including visual witchcraft, Nakshi Katha, and Hindu Idol making. In an ongoing work, we are engaging with women on their daily-life reproductive care information queries and use of digital platforms and their interpretability. We use this understanding of their data literacy in designing culturally appropriate AI-infused infographics.  

A group of rural Bangladeshi female villagers participating in Focus Group Discussion with the ethnogrpaher and PI Sultana.

Selected publications and activities: 

• [CHI 2023] Abstraction and semiology in constructing visual narratives,

• [CSCW 2023] Digital maternal and child health in South Africa,

• [FAccT 2022] Big data and AI in Global South [Workshop], 

• [Mozilla Festival 2022] Decolonizing AI [Workshop],

• [ECSCW 2022] Fieldwork reflections on pictorial consent,

• [CSCW 2021] Supporting Support Frontline Health Workers in India.

• [CSCW 2021] Rural fact-checking procedure for misinformation [🏅Diversity and inclusion recognition], 

• [CSCW 2020] Contrasting grammar of modern data visualization and local traditional visualization, 

• [NordCHI 2020] High-risk Pregnancies and Digital Health in North-West India.

• [ACM Interactions 2020] Rural faith-based practice in combating COVID-19,

• [CHI 2019] Witchcraft and HCI: Morality, modernity, and postcolonial computing.

• [CSCW 2019] Faith-based and situated knowledge in rural healthcare practices,

• [ICHCI 2018] Pregnancy care and community stakeholders in South India,

• [TOCHI 2015] Self-care technologies in HCI: Trends, tensions, and opportunities,

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Project Team:

(a) Team of Bangladeshi Side:
Our core team includes the PI, local partner NGO Rural Reconstruction Foundation (RRF), and our existing field connections in rural villages in Bangladesh. 

PI Sharifa Sultana is an Assistant Professor of Computer Science at the University of Illinois Urbana-Champaign, USA. She is a human-computer interaction (HCI) designer and critical computing researcher. She engages with justice concerns, including designing decolonial data-driven systems and AI, computing for alternative rationalities and moralities, and gender justice in computing. She deploys a variety of qualitative, quantitative, and design methodologies to probe and address social justice agendas in low-resource, marginalized communities. She has more than 7+ years of experience conducting ethnography, co-design, and deployment with rural villagers in Jessore, Bangladesh. She builds and evaluates computing technologies, including accessible, low-cost, and intelligent mobile and web applications to improve the quality of their life. Multiple of her research projects on gender justice and well-being in the Global South were published, presented, and won awards in ACM SIGCHI and CSCW. 
Support team in the field: 

Salim Reza is the Director of the Microfinance Program at the Rural Reconstruction Foundation (RRF), Bangladesh, and also Sultana’s long-term research partner in rural Bangladesh. He has been working with RRF for 17+ years. Some of the other notable World Bank-supported projects led by Reza include the Sustainable Enterprise Project on flower cultivation (SEP), the Low Income Community Housing Support (LICHS) Project, and the Recovery and Advancement of Informal Sector Employment (RAISE). With RRF, he has developed extensive experience in directing community healthcare projects, particularly on midwifery training for rural women, adolescent healthcare, pregnancy care, and family planning. He directs RRF’s operation in 34 districts (among 64 districts) in Bangladesh. 

In addition to RRF’s support team, we have local Bangladeshi software developers and field researchers affiliated with local Bangladeshi industry and research institutions who have been conducting research with us in partnership for many years. Their contribution will be sought in different stages of this project. 

(b) Team of Indian Side:
Our core team includes the PI, local partner NGO Design Beku, and our existing field connections in rural villages in India. 

PI Nervo Verdezoto is the Lead of the Human-Centred Computer Research Unit and Senior Lecturer in Human-Computer Interaction and Digital Health at the School of Computer Science and Informatics at Cardiff University in Wales, UK. He has expertise in ethnographically informed design, user-centered and participatory design, and design and evaluation of sociotechnical systems with a particular interest in the healthcare and sustainability domains. His previous research has investigated how older adults and pregnant women use self-care technologies in their everyday lives and how these shape their everyday care practices, clinical encounters, and decision-making. His recent work has investigated care infrastructures in the Global South (e.g., India, Bangladesh, Ecuador, Peru, Ghana, South Africa, etc.) and how pregnant women use and interact with antenatal care services, especially to manage pregnancy complications and how socio-technical and cultural practices influence women, parents and young children's experiences of care. In addition,  his research has explored the use of community-based co-design in low- and middle-income settings for digital maternal and child health. Google h-index 17. Research funded by GCRF, MRC, AHRC, EPSRC, Newton Fund, GW4, etc.
Support team in the field: 

Naveen Bagalkot is one of the founders of “Design Beku Services LLP” which explores the possibilities of manifesting alternative imaginaries for design and technology, grounded in a feminist ethics of care. He is also an Associate Professor at Srishti Manipal Institute of Art, Design, & Technology, Manipal Academy of Higher Education, Bangalore, India. His research is at the intersections of Human-Computer Interaction (HCI), Information and Communication Technology for Development (ICTD), Participatory Design, and Community Wellbeing. He has been working closely with grassroots, third-sector, and activist organizations, such as MAYA Health and Jatan Sansthan, combining ethnographic methods with community-based participatory design research to engage with women, young people, children, and other community stakeholders to support low-resource communities in different areas of health including sexual reproductive health and education. Through his ongoing work that spans beyond a particular health concern to encompass community wellbeing, he has successfully set up community networks for participatory research and action in South and North-West India. In collaboration with Karnataka Health Promotion Trust, he has also started a new project in the coastal region of Karnataka focusing on strengthening the local governance structures (Gram Panchayats) towards enabling holistic health. All his experience open the opportunities to engage in two or three sites within India.

University of Illinois Urbana-Champaign, USA

Rural Reconstruction Foundation, 

Bangladesh

Cardiff University,

UK